One month post-op update

It’s been one month since I was the 2nd to be treated in the CHM clinical trial at Penn.  Surgery was on March 31st and went very well.  Since then I’ve had a few check ups, all of which also went well.
The night prior to my surgery I got to meet and hang out with 4 fellow CHMers which was awesome.  We went to the City Tap House, where I got to watch them drink some tasty beers while all I was allowed to have was water.  Didn’t seem fair but I must say the water was very good!  Ok, now I’m just trying to make myself feel better. After that we had to walk a few blocks back to the hotel, yeah 5 blind guys who can’t see at night walking in the dark together… I don’t see what could go wrong there. It was an interesting walk but we had no issues getting back.
I just got back from my one month follow up visit.  After doing 3 more days of tests, they determined that my surgical eye is back to where it was before surgery which is good news.  It will be quite a while before we really have any results to report, as the surgery is to try to stop the progression of the disease.  But so far everything is going as hoped.
My next check up will be near the end of June/early July.  Might sound a little odd but I’m looking forward to it.  The team is made up of absolutely amazing people.  I couldn’t ask for a better group of people to work with.  They make me feel like family, Philadelphia is my home away from home.
Lastly, I would like to thank the CRF (Choroideremia Research Foundation) for everything they’ve done in making this trial possible.  They have done so many fundraisers and put in a lot of hard work and dedication to get the CHM research where it is today.  Without the fundraising and donations this amazing opportunity wouldn’t have been possible.  Please consider donating to the CRF at WWW.CURECHM.ORG  Thank you!


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